The Diabetes Forum Support Community For Diabetics Online banner

21 - 40 of 74 Posts

Registered
Joined
495 Posts
From everything you have said and i have read, your son continues to have good readings over the recent months. You mentioned his fasting of 4, 2 hours after breakfast 5, then 2 hrs after lunch 5 and dinner 6 and all without any insulin or oral meds. He is negative for pancreatitis, has not been on corticosteroids, and has no issue with eating foods high in carbs. I suspect his drinking binge contributed to his hyperglycemia and ketones and temporarily induced insulin resistance back in April.

Knowledge is power and getting a GAD and C-peptide test (post meal is a better indicator than fasting) which Dr already ordered/will order will at very least provide a baseline for comparison in the future and if normal will give you and son peace of mind. I wouldnt be surprised if he has no GAD autoantibodies and more than sufficient production of c-peptide. Good idea to get a hemoglobin A1c test to measure blood sugar levels over last 2 to 3 months. A reading of 5.7 and under is what you want. a 5.7 to 6.4 reading is pre diabetic range and 6.5 and over is classified as diabetes.
 
  • Like
Reactions: Lily B

Registered
Joined
85 Posts
Discussion Starter · #22 ·
From everything you have said and i have read, your son continues to have good readings over the recent months. You mentioned his fasting of 4, 2 hours after breakfast 5, then 2 hrs after lunch 5 and dinner 6 and all without any insulin or oral meds. He is negative for pancreatitis, has not been on corticosteroids, and has no issue with eating foods high in carbs. I suspect his drinking binge contributed to his hyperglycemia and ketones and temporarily induced insulin resistance back in April.

Knowledge is power and getting a GAD and C-peptide test (post meal is a better indicator than fasting) which Dr already ordered/will order will at very least provide a baseline for comparison in the future and if normal will give you and son peace of mind. I wouldnt be surprised if he has no GAD autoantibodies and more than sufficient production of c-peptide. Good idea to get a hemoglobin A1c test to measure blood sugar levels over last 2 to 3 months. A reading of 5.7 and under is what you want. a 5.7 to 6.4 reading is pre diabetic range and 6.5 and over is classified as diabetes.
Thank you for your valuable information HJ
My son had a hemoglobin A1c done back in May and his specialist said she was pleased with his readings, they were normal, around 5.4
That's when he had his first GAD test done, he then got a abnormal reading from that, so had to have the 2nd GAD test done, which seems to have gone missing....he is waiting for a follow up appointment with her

I've very confused as surely they can't have misdiagnosed him?
I know they said originally his weight (tall and very slim) and age 30 had low ketones in his blood......They assumed he was type 1

My son said he feels something isn't right with his diagnose as he feels great, and looks great too, he seems to be able to eat more or less what he wants, no different tomhow he was before his spike that weekend really.
From your experience on this forum, is there anyone you know of that has had this happen to them, and eventually got soreted one way or the other 馃x
 

Registered
Joined
495 Posts
DR's are not infallible and they do not always make the correct diagnoses. An a1c 5.4 is great (in Apr). Hopefully Dr's dont assume a disease or condition without running tests and getting measurable evidence. When a Dr is not sure they can refer a patient to a specialist or talk to another Dr(s). Just because patient had high glucose levels (was 17 mmol or 305) that night in April doesnt mean he has diabetes.
 
  • Like
Reactions: Lily B

Registered
Joined
85 Posts
Discussion Starter · #24 ·
DR's are not infallible and they do not always make the correct diagnoses. An a1c 5.4 is great (in Apr). Hopefully Dr's dont assume a disease or condition without running tests and getting measurable evidence. When a Dr is not sure they can refer a patient to a specialist or talk to another Dr(s). Just because patient had high glucose levels (was 17 mmol or 305) that night in April doesnt mean he has diabetes.
Thank you Hearts Jounrey your information and help has been very helpful, I totally agree Drs, they go by the text books most of the time.
When my son went to hospital that morning I had a feeling he wasn't diabetic
And on return and what he said just didn't sit right with me, and now he has been as normal as you can be we've decided to pay for a private C-petdide test by the time we get this result hopefully the hospital (NHS) will have his GAD Test result ...
I will keep you fully informed...thank you xx

PS I would love to speak to anyone who has had this experience (no insulin, no meds with no raised BG) with type 1
 

Registered
Joined
85 Posts
Discussion Starter · #25 ·
Hospital still haven't got the results for my sons GAD test, he is still eating normal and having no problems with his BG readings, this last week he had increased his carbs and still got good BG readings
 

Registered
Joined
495 Posts
That is good news on your sons glucose control to date. Didnt he get an C-peptide done that was going to be paid for privately? Ive had GAD test completed in 3 days and that was 10 yrs ago.
 
  • Like
Reactions: Lily B

Premium Member
Joined
1,125 Posts
I am not a doctor and dont play one on this website but my opinion is that he was misdiagnosed.

I hope you get the results soon so you can rest easy.

hang in there :vs_cool:
 

Registered
Joined
85 Posts
Discussion Starter · #29 ·
Hi Hearts Jounrey, yes we have asked our son to arrange it....we are away in Italy until Thursday so hoping when we return he will have arranged it .
When I say still no results I mean from the UK hospital (NHS) x
 

Registered
Joined
85 Posts
Discussion Starter · #30 ·
htfmrock I do feel he could have been misdiagnosed, but we read a lot about the "honeymoon period" but folk in this, still state they have a lot of spikes and need a small amount of insulin....my son has been nearly 5 months without at end of this month, with his readings been perfect, as with Hearts Jounrey thank you for your reply x
 

Registered
Joined
85 Posts
Discussion Starter · #31 ·
Hearts Jounrey, we've been told his GAD test/CPeptide privately takes a min 2 weeks for results 馃様
 

Registered
T2
Joined
1,200 Posts
Boy, I've learned a lot from this thread. I had never heard of GAD other than it being an anxiety disorder, which is why I asked about it. I happen to suffer from anxiety.

Well, I wish your son well Lily, and I sure hope you will know something when you get back from your trip.
 
  • Like
Reactions: Lily B

Registered
Joined
495 Posts
I bet keeping your A1c at 5.6 is the best remedy for minimizing anxiety
 

Registered
Joined
495 Posts
Just think Lilly, in retrospect you and your son could have driven to Liverpool, about 4 hr drive from London, and taken the Ferry P&O Irish Sea (about 8 hr excursion) to Dublin Ireland and paid for the C peptide & GAD tests in a lab not affiliated with NHS, you would have had results in May. Think of it this way. You get both a vacation and you can play the tune by Gerry and the Pacemakers called Ferry Cross the Mersey to comfort you


Hearts Jounrey, we've been told his GAD test/CPeptide privately takes a min 2 weeks for results ��
 
  • Like
Reactions: Lily B

Registered
Joined
85 Posts
Discussion Starter · #35 · (Edited)
Boy, I've learned a lot from this thread. I had never heard of GAD other than it being an anxiety disorder, which is why I asked about it. I happen to suffer from anxiety.

Well, I wish your son well Lily, and I sure hope you will know something when you get back from your trip.

Thank you alamogirl, strangely enough I suffer from anxiety too I take citalapram 10mg. I to had never heard of a GAD test until recently.
My son is doing good, I'm wondering if he is happy with the situation with not getting any results as he seems to be just leading a normal life, he said he feels he is back to how he was before his weekend spike at the end of March, he said if he was having any problems he would be rushing to speak the hospital and demanding the tests. xx
 

Registered
Joined
85 Posts
Discussion Starter · #36 ·
Just think Lilly, in retrospect you and your son could have driven to Liverpool, about 4 hr drive from London, and taken the Ferry P&O Irish Sea (about 8 hr excursion) to Dublin Ireland and paid for the C peptide & GAD tests in a lab not affiliated with NHS, you would have had results in May. Think of it this way. You get both a vacation and you can play the tune by Gerry and the Pacemakers called Ferry Cross the Mersey to comfort you

https://www.youtube.com/watch?v=08083BNaYcA

����
Don't think my son would take a holiday break with his mum HJ....
Love Jerry and the Pacemakers especially that song. ��
I've spoken to him today he said he is busy at work, staying away
a couple of days a week, but more importantly he said he feels good and back to how he was before his (weekend March) spike
He knows we will pay for his GAD/Cpeptide test privately through
Spire, (not NHS) who stated they would have his results back 10-14days after.
 

Registered
T2
Joined
1,200 Posts
Wasn't there a movie based on the song, "Ferry Cross the Mersey"? I love that song!
 
  • Like
Reactions: Lily B

Registered
Joined
85 Posts
Discussion Starter · #38 ·
Even son is now saying he is very confused with all this....

He's at a wedding this weekend, he went out last night checked his BS 4 ...eat what everyone else did, he said got back to their room 2 hours later checked his bloods 5
He said he can't believe how he is just eating normal with no spikes, he thought with no insulin he would be having them..
Let's see how the wedding food goes today!.
 

Registered
Joined
85 Posts
Discussion Starter · #39 · (Edited)
Results back ...Hearts Jounrey and all others who have helped me

Son has had his results back, they have said his first two GAD tests came back negative, they did a third test a "ZnT8A" ( Zinc Tramsporter, autoantibody test) is positive so the doctor said the results from this test you get when you have type 1
He said but I'm not on any insulin, feel great and enjoying a great diet
They just said that's just the honeymoon period



So they still seem to believe my son is type 1

Anyone know of this knewish test ZnT8A
 

Registered
Joined
632 Posts
Results back ...Hearts Jounrey and all others who have helped me

Son has had his results back, they have said his first two GAD tests came back negative, they did a third test a "ZnT8A" ( Zinc Tramsporter, autoantibody test) is positive so the doctor said the results from this test you get when you have type 1
He said but I'm not on any insulin, feel great and enjoying a great diet
They just said that's just the honeymoon period



So they still seem to believe my son is type 1

Anyone know of this knewish test ZnT8A
Maybe there's different levels or degrees of the "honeymoon" period. When it happened to me I had a few hypos but I still had to take insulin. Mind you this was 1968/69 and I was only on one shot of Lente Insulin at that time - we (my mom and I) just made sure I was taking less insulin until it was necessary to take more as indicated by urine testing results (how much sugar was being spilled in to my urine).

This was the primitive days of diabetes management - now with fast acting insulins, maybe the honeymoon period poses a greater danger to people.

My advice - test often and see how long and far you can stretch things out. The bottom line - In my opinion - the more stable his Blood Sugar Levels stay the better off he will be and who knows - maybe these tests aren't as accurate as they make them out to be.
 
21 - 40 of 74 Posts
Top