Hello Everyone. My name is Markus. I am the father of Johanna, who will be 4 in March and Benjamin who will soon be 2. Johanna was diagnosed in September and this has pulled the rug from underneath our feet. We are managing this well and Johanna is doing fine. "Doing fine" is actually a bull$&@t terminology. Of course we are on our heels at all times. Checking at night, reading and more reading trying to educate ourselves. This is a ****ty disease.
Johanna was our first child and we were so careful, thinking and rethinking every decision. All this didn't matter as we were hit by this anyway. I have looked through the literature, thinking that vaccines could have been the culprit, but then there are unvaccinated children with type1. I and we are trying to find our s place in this. We need a cure and I need to get rid of my guilty feelings. I am afraid of giving her any vaccines now as I am afraid it could lead to other autoimmune problems. Well, as you all cam see my thoughts still go a thousand different directions, even three months after diagnosis.
Johanna was our first child and we were so careful, thinking and rethinking every decision. All this didn't matter as we were hit by this anyway. I have looked through the literature, thinking that vaccines could have been the culprit, but then there are unvaccinated children with type1. I and we are trying to find our s place in this. We need a cure and I need to get rid of my guilty feelings. I am afraid of giving her any vaccines now as I am afraid it could lead to other autoimmune problems. Well, as you all cam see my thoughts still go a thousand different directions, even three months after diagnosis.