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Hello everyone,

Fist of all, thank you for reading. I just hit my 10 year anniversary this month of being diagnosed with T1. I was 26, now 36. Though I have always had a certain level of anxiety about the disease, it has for some reason really been giving me trouble the last 2-3 months.

I guess for the most part I (think) I have done “ok” with my diabetes. Most A1c are 6-7, but I used to deal with a lot of lows, I had 1 seizure and 2 car accidents bc of dangerous low blood sugar early on in my experience before my CGM. My biggest fear is dealing with diabetic problems later in life. Things like constant pain, neuropathy. Hence, I would rather lean of the low side of my blood sugars. My thoughts were that if I go low, I can just grab a juice box and get it back up pretty quickly, but if I go high, it’s injection and waiting for sugar to stabilize and a general longer time period being high. However one issue I struggle with is night time highs. I work in a restaurant and getting done late, being hungry and not being able to regulate enough before sleeping ending with highs in the 300s or worse occasionally for a few hours overnight until I can correct in am.

So that’s me, I just got on the freestyle libre and it does give me better perspective. I used the Dexcom for a few years but had difficulty affording it. I am always trying to be better but as we all know, it doesn’t go away and we all struggle with it, and have weak moments.

So I guess the reason I bring this up, is multi reasoned, I get really nervous that any time I get a tingle in my toes or foot, that the “end is near”. And I just don’t know how to get over it, there are times I feel paralyzed by the fear of something becoming a permanent issue. How do you all deal with this? How do you know if something is a big deal? Or maybe you just slept weird and it goes away. For those of you that do have complications, how do you deal with it, emotionally, physically?

Thank you for reading and hopefully responding, I appreciate any advice.
 

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So I guess the reason I bring this up, is multi reasoned, I get really nervous that any time I get a tingle in my toes or foot, that the “end is near”. And I just don’t know how to get over it, there are times I feel paralyzed by the fear of something becoming a permanent issue. How do you all deal with this? How do you know if something is a big deal? Or maybe you just slept weird and it goes away. For those of you that do have complications, how do you deal with it, emotionally, physically?
Welcome to the forum, SiGuy!

I can sympathize with that nervous feeling you get. I must have the personality that does wonder with every twinge. Not to minimize your concerns, but it's easy for those feelings to ramp up when you're my age (60). At that point, the odd tingle or three is just part of the game.

I suppose part of getting past that (for me) is experience in outlasting whatever the complication is. Some mornings I wake up so sore that I promise myself to make my first step the bottle of painkiller but, once I start moving, I find the movement makes that pain go away and I never end up taking the painkiller.

If the complication keeps returning, it's time to look for the cause. I have a problem with ulnar nerve compression (somewhat akin to carpal tunnel syndrome) which makes my hands and wrists go numb under certain conditions. I suppose one could mistake that for neuropathy (at least if you haven't experienced diagnosed neuropathy before) but its persistence got me to check it out with my primary-care physician and I found out it is not a complication of diabetes. So I don't ignore that sensation but at least I know it's not a complication of my diabetes.

I hope that helps.
 

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Hi SiGuy, welcome to the forum.

I too understand that nervous feeling about things that can happen as a result of diabetes. I'm a type 2, that doesn't use insulin and can't say I know exactly what you mean. I've been fortunate not to have had nerve damage, eye damage, kidney damage, circulation issues. However, I look at my heart blockage and subsequent quad bypass surgery as a complication of diabetes I didn't escape. After my surgery, for a period of time, everything I thought of that could have been a contributor just worried me to no ends. My blood pressure crept up, I was about to die; I hadn't slept well for years, I was certain I would die if I didn't get a sleep study done soon: I didn't exercise enough; I exercised too much; I ate wrong before; I was eating wrong then; I was going to die and it was REAL. So far none of the things I worried about at that time has as of yet manifested into my surmise.

As in your case, hypo blood sugars are far to often a reality for many Type 1 diabetics that try to maintain normal numbers. But not trying to maintain numbers quite so low may result in high numbers, which has consequences as well. Sometimes its dang if you do and dang if you don't.

Have you heard of Dr. Richard Bernstein's Law of Small Numbers. He too is a Type 1 diabetic and he advocates reducing carbs in his and his patient's diets. With reducing carbs, comes a reduction of insulin needs, which should result in a lowered risk of blood glucose making big swings due to miscalculations of insulin needs. You can read part of his book Diabetes Solution online for free.

A couple of other good books Using Insulin by John Walsh and Think Like a Pancreas by Gary Scheiner may offer some ideas that can help decrease events causing those "the end is near" feelings.
 

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Hello everyone,

So I guess the reason I bring this up, is multi reasoned, I get really nervous that any time I get a tingle in my toes or foot, that the “end is near”. And I just don’t know how to get over it, there are times I feel paralyzed by the fear of something becoming a permanent issue. How do you all deal with this? How do you know if something is a big deal? Or maybe you just slept weird and it goes away. For those of you that do have complications, how do you deal with it, emotionally, physically?

Thank you for reading and hopefully responding, I appreciate any advice.
I appreciate exactly what you're saying. I can remember when I was 5 or 6 years old being told I could get an infection, I could lose my limbs, I could go blind - blah blah blah - all the stuff a 5 or 6 year old wants to hear, Lol

For whatever reason I just didn't think any of that bad stuff would happen to me.

Now I'm 57 and nothing bad relating to my diabetes has happened yet. I sometimes wonder if all that worrying and obsessing was unnecessary but at the time who would know.

I think one of the best approaches people with diabetes can make is to live a physically active life, eat what is healthy to them and just try to make the most of it.

And yes - back in my University years it's no wonder I didn't drink myself to death or today go on long cycle rides without coughing my guts out (considering all the pot I've smoked over the years) but in spite of it all everything seems fine.

So having said that, those nasty side affects of living with Type 1 diabetes may never happen. Best to try to look after yourself and enjoy life the best way you can :)
 

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Hi SiGuy,

Welcome to the forum! I hope you continue to post. This is a great place for support. Everyone here is so helpful!

I understand how you feel. I was diagnosed 2 years ago. Still learning! I come from a family of diabetics. I've seen 1st hand what diabetes can do if you don't take care of yourself, and I've also seen 1st hand how you can live a relatively normal life when you do take care of yourself.

When I was first diagnosed, I was somewhat in denial. All I thought about were the horrible complications that go with diabetes. Then I found this place! I went from a 10.5 A1C to my current 5.8.

I'm determined to live a normal and healthy life. You can too!
 
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