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I was diagnosed in 1945, when I was 6, and there was so little awareness of diabetes then. None of our relatives and friends had heard of it. When I was in my 30's two doctors told me I would not live past my 40's. When I told a few friends what the doctors had said, one of them said that my parents must not have taken good care of me while I was very young. At least they did not blame me, they blamed my parents. Now I am 73, have been type 1 for 67 years, and I have very good diabetes health. My parents took very good care of me. That is why I made it through my childhood.

Do any of you remember things you were told by a doctor, a friend, a relative, or even a stranger, that were very upsetting?
 

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Richard, I could not begin to make a list! I've been blamed for T1 for everything from too much exercise to not being born again. Among the worst is being in hospital with DKA and hearing people talk about you when they think you're unconscious - vast fields of despair! It brings hope to me, however, to see that you've lived with this for so long!
 

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carbcrazydog
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I was diagnosed in 1945, when I was 6, and there was so little awareness of diabetes then. None of our relatives and friends had heard of it. When I was in my 30's two doctors told me I would not live past my 40's. When I told a few friends what the doctors had said, one of them said that my parents must not have taken good care of me while I was very young. At least they did not blame me, they blamed my parents. Now I am 73, have been type 1 for 67 years, and I have very good diabetes health. My parents took very good care of me. That is why I made it through my childhood.

Do any of you remember things you were told by a doctor, a friend, a relative, or even a stranger, that were very upsetting?
Your good health is in itself a slap on those people's face who said you would not live in good health or past 40s. When my father passed away through a heart stroke coupled with uncontrolled diabetes, there were many people who came up to us and told us "if only we had managed his diet, if only we had taken good care of him....etc...". He was in the hospital for a week after the stroke and then passed away. There were people who told us that maybe he was dead since a week and they just kept him there and mint money!!! And some of these people were his immediate siblings.

I think some people are just ruthless. As much as i wish my father was with us right now, i still know that i would not be able to force him to eat right and exercise well. Its a choice he made. Which we wish he would not have. But still......
 

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I was diagnosed in 1945, when I was 6, and there was so little awareness of diabetes then. None of our relatives and friends had heard of it. When I was in my 30's two doctors told me I would not live past my 40's. When I told a few friends what the doctors had said, one of them said that my parents must not have taken good care of me while I was very young. At least they did not blame me, they blamed my parents. Now I am 73, have been type 1 for 67 years, and I have very good diabetes health. My parents took very good care of me. That is why I made it through my childhood.

Do any of you remember things you were told by a doctor, a friend, a relative, or even a stranger, that were very upsetting?
dear richard ,
i still rememberd about ten years ago when my elder brother first dignosed and our family doctor frightened my brother and me few days we meet endocrinologist and we find that he did not frightened us .
two years back when i diagnosed i went to same endocrinologist and told him i am very upset and nervousness he told me dont frightened about diabets but dont and never take it lightly . diabets is opportunity to live healthy life he said many thousand people dont know they have blood pressure and diabetes they r like sit on atombomb . and you r fortunate that you caught diabets in early stage and your all things are fine .
 

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i also know a man in our comunity that if he know someone become diabetes he told amongst friends with smile that this man now become mamu local language slang mean this man penis not erectile .
i know poor man that his family background is full of diabets his mother father and unlce died of diabets complication but he thinks he never get diabets .
 

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Anti-Man Made Carbs!
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Great Thread Richard.

it upsets me when people say "Eric, you're OK now" as if my diabetes has or will go away.

They fail to grasp the day to day struggle this disease is.
 
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I hate it when people tell me I can't have diabetes because I'm not fat, not the type, don't like sweets, etc. but that's where they are now. Nothing to be done about it except to say that my tests show that I have an endocrine syndrome and leave them stymied.
 

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I hate it when people say that if you do "such and such" diet and Exercise then you can "cure" your diabetes. I clue them in real quick! Same with the folks who think if you have to go on medications/Insulin your not doing a good job "managing" your diabetes. What about us Type 1's who have to be on insulin to live? And why is it that diabetes is considered to be an illness that is our fault? Our body doesn't work right.

I'd never wish this on anybody...but I'd like it if they could live a day dealing with what we deal with.

Sorry in a mood tonight... Dealing with my other silent illness: Fibromyalgia.

Jj
 

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I hate hearing that one "type" is better or worse than the other ... especially as I seem to be in the MIDDLE!

Sometimes I am told that T2 is "worse," because you brought it on yourself, and other times I am told T1 is "worse," "so bad you have to use a PUMP!"

Both causes of hyperglycemia, in order to be treated well, require self-discipline and constant vigilance. They both suck ... but, one person told me when informed of my diagnosis, "the diet really sucks, for that." WRONG!!! It is not the diet that sucks, not at all ... it is actually the forethought required, that sucks.

...and, of course, knowing what you know, about how food affects blood sugar, and being unable to convince the uninitiated.
 

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carbcrazydog
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I hate hearing that one "type" is better or worse than the other ... especially as I seem to be in the MIDDLE!

Sometimes I am told that T2 is "worse," because you brought it on yourself, and other times I am told T1 is "worse," "so bad you have to use a PUMP!"

Both causes of hyperglycemia, in order to be treated well, require self-discipline and constant vigilance. They both suck ... but, one person told me when informed of my diagnosis, "the diet really sucks, for that." WRONG!!! It is not the diet that sucks, not at all ... it is actually the forethought required, that sucks.

...and, of course, knowing what you know, about how food affects blood sugar, and being unable to convince the uninitiated.
Oh i hate the half baked knowledge too. They seem to believe that anything sweet raises blood sugar so if diabetics dont eat sweets, they are cured (and sometimes potatoes)! I have a tough time convincing people that any food deep fried, that grows undergrounds, fruits (!!!!) raise sugar. They seem to think that i must sneak in some sweets here and there and blame it on fruits and grains. LOL!

My father in law, a diabetic since before my marriage was suggesting me to drink a mix of carrot betroot juice if i cant have regular fruits juices. He was not convinced when i said that carrot and betroot are a strict no-no. At times it feels i am fighting a lost battle here. I lost my father through diabetes and so i try extra hard to make my father in law act a little more responsibly. Still trying to get some success on that.....
 

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I hate it when people say that if you do "such and such" diet and Exercise then you can "cure" your diabetes. I clue them in real quick! Same with the folks who think if you have to go on medications/Insulin your not doing a good job "managing" your diabetes. What about us Type 1's who have to be on insulin to live? And why is it that diabetes is considered to be an illness that is our fault? Our body doesn't work right.

I'd never wish this on anybody...but I'd like it if they could live a day dealing with what we deal with.

Sorry in a mood tonight... Dealing with my other silent illness: Fibromyalgia.

Jj
Oh, JJ. I'm sorry about your fibro. I have two friends with it. It's a tough one. You can look fine but be in pain, and everyone else thinks you're either faking or it's in your head. I suffer from depression. Sometimes I just hurt. Or I just have no energy. People don't get it.

I worked for a rheumatologist for a while and asked their take on fibro. She admitted that most rheumatologist a think fibro is of the patients own creation. She just tries to help her patients deal with the symptoms (she believes it's a real disease, and not psychosomatic) and find treatments that best benefit each patient.

As for what people say about diabetes.. How can you "cure" a chronic disease? Even cancer survivors are still cancer patients, even if they are in remission.

My family believes I brought my diabetes on myself because I'm overweight. They ignore the fact that I have PCOS, which makes you insulin resistant also. My doctor took me off my birth control pills because she was worried about my BP two months before my diagnosis.
 

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Deep fried foods don't raise my blood sugar unless they're breaded with high-carb breading, which means I must be eating somebody else's cooking.

It's the wrong breading that does it, not the deep frying. I was pan-frying some huge catfish filets last week, and a visitor commented on how nice they looked and where did I get them and did I buy them breaded? Are you kidding?! I bought fresh fish - never been frozen - breaded them myself with an egg bath & the WPI/hi-maize mixture, and then I fried them in an inch of melted butter in the iron skillet. Please let's don't turn people off to frying foods - just teach them to do it the right way. Use low-carb breading and good saturated fats for the frying.
 

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carbcrazydog
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Deep fried foods don't raise my blood sugar unless they're breaded with high-carb breading, which means I must be eating somebody else's cooking.

It's the wrong breading that does it, not the deep frying. I was pan-frying some huge catfish filets last week, and a visitor commented on how nice they looked and where did I get them and did I buy them breaded? Are you kidding?! I bought fresh fish - never been frozen - breaded them myself with an egg bath & the WPI/hi-maize mixture, and then I fried them in an inch of melted butter in the iron skillet. Please let's don't turn people off to frying foods - just teach them to do it the right way. Use low-carb breading and good saturated fats for the frying.
Aah! Let me try this. Now that i think of it, i have never tried low carb food deep fried. We make these lentil balls which are deep fried but then lentils are again high carb! Normally cooked lentils raise my BG but the deep fried ones raise it even more. Guess there must be some other reason for it. Thanks for letting me know this and clearing my misconception. I will have to try this out!
 

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Well, I figure its taken me two years to acquire enough knowledge about diabetes just to get through the day. For us, it never stops. For others, it doesn't really exist beyond the occasional celebrity blip. That slip of phrase and the accusations have driven me to despair at times. The upside is I've gotten to learn so much more about other people; both good and bad. Also to reflect on some dark corners of my psyche I'd conveniently overlooked. There is much to be learned in the process of forgiveness!
 

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carbcrazydog
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Well, I figure its taken me two years to acquire enough knowledge about diabetes just to get through the day. For us, it never stops. For others, it doesn't really exist beyond the occasional celebrity blip. That slip of phrase and the accusations have driven me to despair at times. The upside is I've gotten to learn so much more about other people; both good and bad. Also to reflect on some dark corners of my psyche I'd conveniently overlooked. There is much to be learned in the process of forgiveness!
Thats a beautiful way of looking at it!
 

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I'm a freelance court reporter and work with different attorneys and witnesses every day.

I was on a break the other day and eating a snack of almonds and hazelnuts. One of the attorneys came back with his coffee and commented on my snack. I told him that I always have a ready snack with me because I'm diabetic. He asked this question: "Is that where you can't have sugar or you can have sugar?"

I spent the entirety of the break giving him a quick Diabetes 101 talk basically correcting his misconceptions and educating him about the basics. I was astonished that a highly-educated man had little-to-no knowledge about something that consumes my every waking moment. :confused: Live and learn.
 

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For me, the most frustrating statement is "But just have a little, it won't hurt you". I swear I will not be responsible for my actions the next time I hear that! If they want to continue to believe that carbs are not harmful to them then fine, but don't assume to know what is best for a diabetic. We spend so much time learning how to deal with Diabetes and they think we just sit by the TV eating candy and munching on Big Macs all day.
 

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This thread is an education for me . . . I must have a very threatening demeanor, because I gotta tell ya, people don't mess with me about this. About the only one I ever interact with is my brother-in-law who is LADA, and we compare fastings on the rare occasions when we're together, eating basically the same meals for a few days at a time during family reunions . . . and he'll tip me off when he knows the composition of certain menu items that might impact me worse than him with his insulin pen. :cool:
Just call me 'granny grizzly' . . .
 

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Oh, JJ. I'm sorry about your fibro. I have two friends with it. It's a tough one. You can look fine but be in pain, and everyone else thinks you're either faking or it's in your head. I suffer from depression. Sometimes I just hurt. Or I just have no energy. People don't get it.

I worked for a rheumatologist for a while and asked their take on fibro. She admitted that most rheumatologist a think fibro is of the patients own creation. She just tries to help her patients deal with the symptoms (she believes it's a real disease, and not psychosomatic) and find treatments that best benefit each patient.

As for what people say about diabetes.. How can you "cure" a chronic disease? Even cancer survivors are still cancer patients, even if they are in remission.

My family believes I brought my diabetes on myself because I'm overweight. They ignore the fact that I have PCOS, which makes you insulin resistant also. My doctor took me off my birth control pills because she was worried about my BP two months before my diagnosis.
Ok I'm sorry but I don't know the acronym: PCOS.

About having Fibro: yeah it's no fun and trying to find a doc for it is no picnic. But I have....thank goodness.

The thing is in my family we have two kinds of people it seams: Fighters or loafers. If your not a fighter than your a loafer. So until I was diagnosed with diabetes I had family members believe I was just "lazy". Now that I have been diagnosed then they had something to blame for how I feel.

And now that I have been diagnosed as Type 1 and put on insulin a family member said, "maybe your nerves were under attack and that's why you have muscle pain....maybe now it will go away." It's frustrating...but I realize that the person wants it to be something that makes sense....not Fibro....cause Fibro doesn't make sense.
 

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JJDax said:
Ok I'm sorry but I don't know the acronym: PCOS.

About having Fibro: yeah it's no fun and trying to find a doc for it is no picnic. But I have....thank goodness.

The thing is in my family we have two kinds of people it seams: Fighters or loafers. If your not a fighter than your a loafer. So until I was diagnosed with diabetes I had family members believe I was just "lazy". Now that I have been diagnosed then they had something to blame for how I feel.

And now that I have been diagnosed as Type 1 and put on insulin a family member said, "maybe your nerves were under attack and that's why you have muscle pain....maybe now it will go away." It's frustrating...but I realize that the person wants it to be something that makes sense....not Fibro....cause Fibro doesn't make sense.
PCOS=Polycystic Ovarian Syndrome

Sent from my iPad using Diabetes
 
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